The delights of dissemination

Within the STELLAR project we are striving towards developing a cellular therapy for patients with chronic kidney disease. In order to create awareness for our project amongst the general public we have set up a website and a Facebook page. Both media are visited quite frequently and we receive questions, comments and suggestion from people all over the world. Recently we received a very remarkable message which elated us all.

We were contacted by Andrea Pittini who enquired if we were willing to accept a donation for the STELLAR project and if he could in any way help create awareness for the project. Given the unusual and lovely nature of this message we contacted Andrea and this is his story:

andrea_500At a young age he was diagnosed with small vessel vasculitis. He got anaemia followed by inflammation of the kidney which resulted in a 50% loss of function of his kidneys. Andrea is actively involved in the Vasculitis Foundation for which he has composed a song: http://www.vasculitisfoundation.org/special-events/andrea-pittini-life-vasculitis-awareness-song/ When asked what motivated him to contact us, Andrea told us that the different forms of vasculitis are hard to diagnose. There is little knowledge among GPs. This needs to change so awareness creation is important. Also the kidney failure which can happen overnight is hard to foresee and treat and time is of the essence when inflammation occurs. His challenge is to make other people aware of the disease and create awareness for the research performed in the hope that other people will be better off and do not have to suffer the problems he went through.

When he graduated from his studies in public relations and communication, he and his family plus friends wanted to make a donation for a good cause. They picked STELLAR because the research objectives sounded good and he hopes that the output of the project will be successful so that patients suffering from kidney disease can be cured.

Andrea not only made a generous donation to the STELLAR project, he also agreed on composing a song especially for the STELLAR project.  Andrea is a classically trained pianist and creative musician. He loves to express his feelings through music and explore new ways to compose and produce songs (https://soundcloud.com/pittinimusic). We are grateful for his donation and excited about the song. As soon as the song is finished we will post it on our Facebook page. These are the delights of dissemination.

 

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